ANGELA GEDDES, CYW, BA (Psych), MSW, RSW, YTT, ANNA WEBSTER, MATTHEW SINCLAIR, RJ FORMANEK, & JESS FOWLER (plenary speakers)
SEEING MORE CLEARLY TOGETHER: VOICES OF LIVED EXPERIENCE DISCUSS THE IMPORTANCE OF RELATIONSHIPS, RELEVANT SUPPORTS, AND HOPE ACROSS THE LIFESPAN
This plenary panel brings together adults with living experience with FASD, caregivers, and professionals working to improve community understanding and support systems across the lifespan. Through honest conversation, reflection, and practical insight, panelists will explore the realities of living with FASD, the importance of relationships and community supports, and the urgent need for more compassionate, collaborative, and neurodevelopmentally informed approaches across mental health, education, justice, healthcare, and social service systems. The panel will highlight both the significant challenges associated with prenatal alcohol and substance exposure and the strengths, resilience, and possibilities that emerge when individuals and families are properly understood and supported. Conversations will also address stigma reduction, prevention, trauma-informed and treatment-adapted approaches, and the importance of listening to people with lived experience when shaping policy, practice, and systems of care. Participants will leave with actionable ideas, renewed compassion, and practical strategies to foster safer, more inclusive, and more hopeful communities for individuals and families impacted by FASD.
Learning Objectives:
- Recognize the lifelong and whole-body impacts of prenatal alcohol and substance exposure through a compassionate, neurodevelopmental, and lived-experience lens.
- Evaluate relationship-based, trauma-informed, and strengths-focused approaches that improve support outcomes for individuals, caregivers, and families.
- Discuss how stigma, misunderstanding, and systemic barriers can contribute to harm, while identifying opportunities for more inclusive and collaborative support.
- Demonstrate practical, lived-experience-informed strategies to strengthen advocacy, communication, prevention, and service delivery within participants’ own communities and organizations.
About:
Anna Webster is Founder and Director of Neurowise and is a specialist on neurodiversity, particularly ADHD, autism, and FASD. She is a Coaching Psychologist, certified NHS Wellbeing Coach, qualified expert Trainer, and Psychotherapist in Training. For the past five years, Anna has worked for The University of Salford on SPECIFiC; a post-diagnostic programme on FASD and the first of its kind in the UK. She co-wrote the manual, co-delivers the programme, and leads on Public Involvement. Anna holds an MSc in Psychology with Neuroscience, with research on the wellbeing needs of FASD caregivers, and an MA in Sociology. She has further certifications in Acceptance and Commitment Therapy, Mindful Self Compassion, Emotion Coaching, and Dialectical Behaviour Therapy. Anna is adoptive mum to a gorgeous 13-year-old boy with FASD, ADHD, and autism. She brings the insights of lived experience to her coaching and training programmes and is passionate about improving the wellbeing of neurodivergent families.
Matthew Sinclair’s home community is Peter Ballantyne Cree Nation in the traditional territory of treaty six and ten. He resides in London, Ontario. His educational background is a combination of lived experience and academic, as he graduated from the Sault College Graduate Program FASD class of 2021. In recent years, Matthew continued his professional development and is accredited with the Indigenous Certification Board of Canada.
Having not received an FASD diagnosis until his late forties, RJ Formanek was startled to find how many of the strategies he had used throughout life were a result of FASD. While being educated in FASD at the Anishinabek Educational Institute in North Bay, Ontario, RJ found that the sharing of these strategies were a helpful educational tool and that, along with founding the Facebook support group, “Flying With Broken Wings,” gives him a unique insight into living with FASD, which he shares freely. He is co-founder of the FASD advocacy and support group, “Red Shoes Rocks,” which shows that FASD is real and many people are dealing with it every day, all around the world. RJ also speaks widely, advocating for people living on the spectrum. It is through team effort that there are more research and education being done, and getting this information out to the public is important.
Jess Fowler is a creative and determined young woman who continues to challenge expectations and demonstrate what is possible when strengths are recognized and supported. Diagnosed with FASD, she has consistently exceeded the expectations of professionals involved in her life, including her physician, through her perseverance, resilience, and commitment to personal growth. Currently enrolled in the Child and Youth Care program at Lambton College, Jess is pursuing her passion for helping others and making a positive difference in her community. Her experiences have helped shape a deep sense of empathy, understanding, and compassion that she brings to her studies and relationships. A talented and imaginative individual, Jess enjoys expressing herself through painting and music. She is also an active participant in Live Action Role Play (LARP), where she combines creativity, storytelling, teamwork, and problem-solving in a fun and engaging way. These interests provide opportunities for self-expression, social connection, and continued skill development. Known for her positive attitude, kindness, and determination, Jess is an inspiring example of how individuals with FASD can thrive when given opportunities to build on their strengths. Her journey reflects resilience, hard work, and a belief in her ability to achieve her goals, and she continues to inspire those around her as she works toward a meaningful future.
Angela Geddes, CYW, BA (Psych), MSW, RSW, MYACT, YTT, is a registered social worker, psychotherapist, and founder of Geddes Specialized Supports & Integrative Wellness Inc. With over 30 years of experience, Angela supports individuals and families navigating complex neurodevelopmental and mental health challenges, including FASD, ADHD, trauma, and intergenerational adversity. Her work is grounded in trauma-informed, family-centred, and neurodevelopmentally sensitive practice, with a strong focus on translating research into practical, compassionate strategies. Angela is the author of A Complicated and Beautiful Brain, Not Your Typical Parenting Guide, Not Your Typical Teaching Guide, and her most recent Not Your Typical Growing Up and Adulting Guide (with corresponding workbook). She is also a certified Mindfulness, Yoga, and Acceptance and Commitment Therapy (ACT) practitioner. Angela leads a small team of clinicians and collaborates with schools, child and social welfare, legal, and health systems to improve understanding and support for individuals with hidden disabilities. She is a sought-after speaker and trainer, committed to reducing both the incidence and impact of prenatal alcohol/substance exposure and strengthening coordinated, compassionate care across the lifespan.